Finding Control and Compassion: Brain Injury Week and the Power of Understanding

Each year, Brain Injury Week provides a crucial moment to reflect, educate, and advocate for those living with the often invisible and life-altering consequences of brain injury. Whether caused by trauma, stroke, infection, or other neurological conditions, brain injuries can impact every area of a person’s life—thinking, emotion, movement, communication, and social connection.

But while medical treatments and physical rehabilitation are well-recognized, the psychological and emotional landscape of brain injury recovery can remain underexplored. This is where psychological models like Perceptual Control Theory (PCT) and Compassion-Focused Therapy (CFT) offer profound insights—not just for individuals with brain injuries, but also for caregivers, families, and professionals supporting them.

The Hidden Struggles of Brain Injury

One of the defining challenges of brain injury is that it often isn’t visible. People may look “fine” on the outside while struggling with memory, concentration, fatigue, sensory overload, or changes in personality. Emotional regulation can become difficult, and so can maintaining relationships. For survivors, the frustration of no longer being able to function as they once did can lead to a deep sense of grief and loss of identity.

That’s why Brain Injury Week isn’t just about awareness—it’s about compassion. It's a time to remind society that healing from a brain injury is not linear, and that emotional support is just as vital as physical care.

Understanding Through Perceptual Control Theory (PCT)

Perceptual Control Theory (PCT), developed by William T. Powers, provides a helpful lens for understanding human behavior, especially in the context of change or trauma. At its core, PCT suggests that we are constantly trying to control our perceptions of the world to match our internal goals or reference values.

After a brain injury, many of these internal goals—such as being independent, working, or maintaining social roles—become harder or impossible to achieve. This mismatch between desired goals and current reality can result in distress, anxiety, or depression. According to PCT, the more important a goal is to a person, and the more it's blocked, the more psychological tension they will experience.

In therapy, applying PCT means helping individuals recognize which goals are causing distress, and supporting them to find adaptive ways to regain a sense of control—either by re-establishing those goals through new strategies or re-evaluating and adjusting them to better fit the current reality.

Compassion-Focused Therapy: Healing the Emotional Self

While PCT focuses on control, Compassion-Focused Therapy (CFT), developed by Paul Gilbert, emphasizes warmth, acceptance, and the importance of a supportive inner and outer environment. For brain injury survivors, whose self-esteem and self-identity are often shaken, compassion—both from themselves and others—can be a lifeline.

CFT helps individuals understand how their brains have evolved to respond to threat and how a brain injury can exacerbate these systems. Many survivors experience heightened shame, frustration, or self-criticism due to perceived failures or limitations. Compassion-Focused Therapy works to soothe these responses by cultivating a compassionate inner voice, often through imagery, mindfulness, and the development of the "compassionate self."

It also encourages caregivers and professionals to respond to challenging behaviors not with judgment but with understanding. When someone seems irritable or withdrawn post-injury, they may be experiencing internal chaos, confusion, or fear—things that require empathy, not discipline.

Building a More Compassionate Culture

Brain Injury Week reminds us that awareness is not just about facts—it’s about attitude. Understanding the psychological frameworks behind behavior allows us to respond more helpfully. When we integrate models like PCT and CFT into support strategies, we not only promote emotional healing, but we also empower survivors to rebuild a sense of control and self-worth.

This week, let’s aim to listen more deeply, judge less quickly, and offer both survivors and their support networks the validation and compassion they deserve. Recovery is not about returning to who someone was before—it’s about discovering who they can become, with the right support, kindness, and understanding.

Recommended reading:

Concussion: Traumatic Brain Injury, mTBI: The Ultimate TBI Rehabilitation Guide

by Leon Edward and Dr. Anum Khan

Grab a copy HERE.